Experiences of people living with epilepsy presenting for treatment at Umlazi Clinic

Abstract

Epilepsy is one of the world’s most common neurological disorders of the brain. It is a condition that affects individuals in most countries worldwide. However, there is still stigma attached to epilepsy, and the condition is often misunderstood. However, there are people who understand the condition and the care that PWE need. Aim of the study : The aim of the study was to describe the lived experiences of people with epilepsy. Methodology : A descriptive phenomenological methodology was used. This study is guided by Parse’s Theory of Human Becoming. In-depth interviews were conducted with eight participants. The main research question that was asked in this study was: What are experiences of people living with epilepsy? Results : The findings of this study revealed that people with epilepsy still face challenges unique to their lifestyles. The lack of knowledge among communities has led to negative experiences of people with epilepsy. Family members often provide support to people with epilepsy; especially female partners support their husbands.